Families of Spinal Muscular Atrophy
Elk Grove Village, Illinois · EIN 363320440 · Private foundation
Based in Elk Grove Village, Illinois, Families of Spinal Muscular Atrophy has awarded $15.1M across 171 grants in our index of public IRS filings, with giving recorded as recently as 2025. Its largest grant on record went to Trustees of Columbia University - Nyc. This profile covers its focus areas, top grant recipients, year-by-year giving, and how a nonprofit should approach it.
What Families of Spinal Muscular Atrophy funds
Families of Spinal Muscular Atrophy's giving carries a documented focus on health care, higher education.
Populations it has supported include children, families, women girls.
Grant history
The largest grants Bespoke Grants has on record for Families of Spinal Muscular Atrophy, by amount:
| Recipient | Location | Grant | Year |
|---|---|---|---|
| Trustees of Columbia University - Nyc PNCR NETWORK | New York, NY | $700K | 2021 |
| Trustees of Columbia University - Nyc PNCR NETWORK | New York, NY | $375K | 2023 |
| Boston Children's Hospital PNCR NETWORK & BASIC RESEARCH | Boston, MA | $347K | 2025 |
| Ann & Robert H Lurie Children's Hospital of Chicago PNCR NETWORK & BASIC RESEARCH | Chicago, IL | $307K | 2025 |
| Trustees of Columbia University - Nyc PNCR NETWORK & BASIC RESEARCH | New York, NY | $307K | 2025 |
| Leland Stanford Junior University PNCR NETWORK | Stanford, CA | $252K | 2025 |
| Boston Children's Hospital PNCR NETWORK | Boston, MA | $250K | 2021 |
| Trustees of Columbia University - Nyc PNCR - CARE CENTER NETWORK | New York, NY | $250K | 2019 |
| Leland Stanford Junior University PNCR NETWORK | Stanford, CA | $245K | 2023 |
| Boston Children's Hospital PNCR NETWORK | Boston, MA | $240K | 2023 |
| University of Rochester PNCR NETWORK | Rochester, NY | $230K | 2025 |
| Trustees of Columbia University of Nyc RESEARCH - BASIC | New York, NY | $229K | 2018 |
| Mi Dept of Health & Human Services RESEARCH - NEWBORN SCREENING | Lansing, MI | $214K | 2018 |
| Board of Regents of the University of Wi-madison RESEARCH - NEWBORN SCREENING | Milwaukee, WI | $211K | 2018 |
| University of Rochester PNCR NETWORK | Rochester, NY | $210K | 2023 |
Families of Spinal Muscular Atrophy giving by year
Total grants Bespoke Grants has indexed for each filing year:
How to apply for funding from Families of Spinal Muscular Atrophy
Families of Spinal Muscular Atrophy's public IRS filing does not spell out a formal application process. Foundations of this size often give primarily to organizations they already know, so a concise letter of inquiry or a warm introduction is usually the best first contact — not a full proposal. You can review the foundation directly at curesma.org.
Is Families of Spinal Muscular Atrophy the right funder for your nonprofit?
This page shows what Families of Spinal Muscular Atrophy has funded. Bespoke Grants tells you whether it fits your mission — and finds every other foundation that does. Free, no credit card.
Match my nonprofit to funders →Frequently asked questions about Families of Spinal Muscular Atrophy
- Does Families of Spinal Muscular Atrophy accept grant applications?
- Families of Spinal Muscular Atrophy's public filing does not specify an application process. A brief letter of inquiry or a warm introduction is usually the best first step with a private foundation of this size.
- What does Families of Spinal Muscular Atrophy fund?
- Families of Spinal Muscular Atrophy's grants focus on health care. Recent recipients include Trustees of Columbia University - Nyc, Trustees of Columbia University - Nyc, Boston Children's Hospital. Its full grant history is listed above.
- How much does Families of Spinal Muscular Atrophy give in grants?
- Families of Spinal Muscular Atrophy reported $2.6M in grants in its most recent IRS filing (FY2021). Across all years in our data it has awarded $15.1M over 171 grants.
- Where is Families of Spinal Muscular Atrophy located?
- Families of Spinal Muscular Atrophy is based in Elk Grove Village, Illinois. Its IRS employer identification number (EIN) is 363320440.
- How can I find foundations similar to Families of Spinal Muscular Atrophy?
- Bespoke Grants matches your nonprofit against 225,000+ foundations like Families of Spinal Muscular Atrophy, ranking each by how well it fits your mission, location, and budget — with the reasoning shown. It is free to search.
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