National Organization for Rare
Quincy, Massachusetts · EIN 133223946 · Private foundation
National Organization for Rare is a private foundation based in Quincy, Massachusetts. Its indexed IRS summary (FY2025) lists $22.1M in giving and $66.9M in assets. Bespoke Grants tracks 60 individual grants from this funder — $1.3M awarded across 2016–2024 — including its support for health care. This public overview includes selected grant examples.
What National Organization for Rare funds
National Organization for Rare's giving carries a documented focus on health care.
Populations it has supported include children.
Selected grant examples
Up to three historical grant examples from public IRS filings are shown below, ordered by amount. This sample is not a complete funding history.
| Recipient | Location | Grant | Year |
|---|---|---|---|
| University of Colorado Denver VARIANT NONKETOTIC HYPERGLYCINEMIA: FROM GENETIC DIAGNOSIS TO CURATIVE TREATMENT AND ROLE OF PERICYTES AND PLATELET-DERIVED GROWTH FACTOR-BE | Denver, CO | $64K | 2016 |
| Johns Hopkins University RESEARCH GRANT. | Baltimore, MD | $55K | 2019 |
| Regents of University of California STEM CELL DERIVED HUMAN THYMUS FOR THE STUDY OF APS1 | San Francisco, CA | $50K | 2017 |
How to apply for funding from National Organization for Rare
National Organization for Rare's public IRS filing does not spell out a formal application process. That does not establish that applications are open. Check the foundation's official website or contact it directly for current guidelines before preparing or sending a request. You can review the foundation directly at rarediseases.org.
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Frequently asked questions about National Organization for Rare
- Does National Organization for Rare accept grant applications?
- National Organization for Rare's public filing does not specify an application process. A filing alone cannot confirm whether applications are currently open. Check the foundation's official website or contact it for current guidelines.
- What does National Organization for Rare fund?
- National Organization for Rare's grants focus on health care. Example recipients include University of Colorado Denver, Johns Hopkins University, Regents of University of California. Up to three historical grant examples appear above. Full indexed grant histories require All access at $19/month.
- How much does National Organization for Rare give in grants?
- National Organization for Rare's indexed IRS summary for FY2025 lists $22.1M in giving. Across all years in our data it has awarded $1.3M over 60 grants.
- Where is National Organization for Rare located?
- National Organization for Rare is based in Quincy, Massachusetts. Its IRS employer identification number (EIN) is 133223946.
- How can I find foundations similar to National Organization for Rare?
- Compare priorities, past recipients, and grant sizes with your program. Bespoke Grants includes one free successful search per account, for life, with up to three sourced matches. No card. Further searches and full research cost $19/month.
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